Welcome! I am a Crohn's colitis survivor, fighter and persistant proactive patient that will not stop the search.. 4 THE CURE! Meanwhile, I will utilize this blog to educate, support and provide up to date, valuable information about Crohn's Disease, IBD, IBS and many other chronic conditions.
Thursday, April 28, 2011
FDA finds more blood cancer with TNF blocker drugs *Reuters Article*
Wednesday, April 27, 2011
Yuck = Biologic Drugs-Article states Humira causes permanent nerve damage
Abbott Labs Sued on Claim Humira Caused Lasting Nerve Damage
Safety Data
Issued Report
Months of Injections
Saturday, April 23, 2011
Bogus baker gets prison term - Crime/Safety - NewsObserver.com
RALEIGH -- When Paul Seelig, the Durham "baker" who sold bogus gluten-free bread that sickened dozens of people, was sentenced to up to 11 years in prison in Wake Superior Court on Tuesday, a digital cheer erupted from the nation's celiac community.
It wasn't just that a man whose case was followed on dozens of celiac- and gluten-related blogs and message boards was going to prison. It was also that state agriculture investigators and prosecutors were willing to tackle the case in the first place.
"Good deal," wrote a poster from Owatonna, Minn., who goes by the name Celiabetic on the Glutenfree.com forum. "Nice to know someone has our back on top of the precedent it sets
An estimated one in 133 Americans has celiac disease. Sufferers can become ill with a host of symptoms after consuming gluten, a protein in grains such as wheat and barley.
Gluten-free products sell at premium prices, but there is no federal standard for them and labeling is voluntary. So Seelig's conviction was an unusual courtroom victory for celiac sufferers, who have to rely on the honesty of food companies and restaurants that claim to produce products without gluten.
The dozens of blogs and message boards devoted to celiac disease often have an underdog, we've-got-to-help-ourselves-because-no-one-else-will tone, along with the tips and information such as what restaurants and shops offer gluten-free foods.
Seelig's case was a popular topic in that world for more than a year. Bloggers on sites such as Gluten Freedom Atlanta, Gluten-Free Faces or The Savvy Celiac opined on the case themselves or linked to mainstream media coverage.
Zach Becker, who writes the GlutenFree Raleigh blog, said he follows more than 100 blogs that deal with gluten issues and corresponds with gluten-free activists and advocacy groups.
There are so many blogs, Becker said, because often those suffering from the disease get little more from their doctors than a diagnosis and instructions to avoid gluten, but little about how to do that.
"They can't tell you much about how, so there's no traditional means to learn it, and so you have to learn from blogs and message boards and Twitter," he said.
Avoiding gluten isn't as simple as not eating wheat bread. The protein can appear in other foods or even products such as shampoo. Restaurants that try to cook without gluten can easily cross-contaminate by doing things such as using the same surfaces to prepare foods with gluten and those without.
A victim speaks
All of the most popular blogs followed Seelig's case, he said.
Becker was one of Seelig's customers who got sick, and he publicized the case heavily on his blog, testified during the trial and, just before Seelig was sentenced, read a statement to the court that included this:
"This case needs to stand as a deterrent to others who might follow in Paul Seelig's footsteps and defraud and poison Gluten Free consumers. Companies need to know that this type of behavior will not be tolerated."
Customers testified during the trial that Seelig's products triggered symptoms that included rashes, nausea and diarrhea. One woman said that she had delivered her baby prematurely, something that can be triggered in celiac patients by exposure to gluten.
Seelig, 48, was sentenced to at least nine years in prison and could serve as many as 11 years. He was found guilty Monday of 23 counts of obtaining property by false pretense after a trial in which he was painted as a prolific liar.
Not baked - repackaged
Among other things, he advertised his baked goods as homemade. Instead, witnesses including a former employee, testified that he bought bread from a commercial bakery in New Jersey and bagels from retailers such as Costco. He then repackaged them in his home kitchen and sold them at the State Fair, at street fairs and by home delivery.
He sold some of those products as gluten-free, though they weren't. Customers and investigators tested the products and found high levels of gluten. Seelig claimed that he tested his bread for gluten weekly, though he couldn't produce test records for the trial. He also maintained that he got his gluten-free products from an Amish baker in Ohio, who had no phone, no street or email address, and said that he paid in cash, so there were no payment records.
Several of Seelig's former customers had attended the trial as spectators or witnesses and returned Tuesday to hear Judge Carl Fox sentence Seelig. They were joined by officials from the state agriculture department and some members of the jury, who had been dismissed after finding Seelig guilty Monday.
Read more: http://www.newsobserver.com/2011/04/13/1125788/bogus-baker-gets-prison-term.html#ixzz1KJrzIeiq
Friday, April 22, 2011
Voices of Crohn's Disease Patients
Thursday, April 21, 2011
How to Compound Low Dose Naltrexone - Article from E-how
http://www.ehow.com/how_5521192_compound-lowdose-naltrexone.html
Interesting article - IBD patients and the dangers of C diff
Saturday, April 16, 2011
Sunday, April 10, 2011
BOSWLLIA Herb Reduces Inflammation - Helps Crohn's,arthritis, colitis, more....
The ancient herb boswellia (Boswellia serrata) has been used for thousands of years to treat conditions that, in recent years, have been found to be caused by inflammation. Originating in Africa, China, and the Middle East, boswellia herbal extract is derived from the sappy resin of the boswellia tree. In the 1970s, German scientists discovered that boswellia produces therapeutic effects similar to those of the non-steroidal anti-inflammatory (NSAID) compounds ibuprofen and aspirin. Unlike boswellia, however, NSAIDs work by inhibiting the cyclooxygenase-2 (COX-2) enzymes. Unfortunately, medications that inhibit COX-2 often inhibit COX-1, which is needed to maintain a healthy stomach lining and common side effects include gastrointestinal bleeding.
Boswellia differs from the NSAIDs in its mode of action. Boswellia has been shown to reduce inflammation in both osteoarthritis and rheumatoid arthritis, inflammatory bowel disease, and other autoimmune conditions by blocking the lethal pro-inflammatory enzyme 5-lipoxygenase (5-LOX). A number of immune system chemicals released during the inflammatory response contribute to the chronic inflammation seen in atherosclerosis, osteoarthritis and certain autoimmune diseases. Blocking these pro-inflammatory chemicals reduces symptoms of inflammation and helps taper the autoimmune mechanism.
The Actions of Boswellia
Although the benefits of boswellia are similar to those of the non-steroidal anti-inflammatory drugs, boswellia works by blocking 5-LOX, which is the first enzyme released in the metabolic pathway leading to the synthesis of the immune system cytokines known as leukotrienes. Leukotrienes are harmful inflammatory substances thought to directly influence the disease process in a number of different disorders, including rheumatoid arthritis, cancer, and asthma.
The active ingredients of boswellia, the boswellic acids, decrease the activity of another pro-inflammatory enzyme known as human leukocyte elastase (HLE). HLE and leukotriene levels are increased in many inflammatory diseases and allergic reactions. To date, boswellia is the only substance known to reduce levels of both HLE and leukotrienes. In 2005, researchers found that boswellia works in part by altering the expression of the cytokine tumor necrosis factor alpha (TNF-α), another integral component in inflammation. An excess of TNF-α promotes chronic inflammation. Applying boswellia to cells has been shown to decrease the TNF-α-induced expression of cell adhesion and matrix metalloproteinase proteins, which are biochemicals related to endothelial dysfunction, cancer metastasis (spreading), arthritis, and other disease processes.
Benefits in Arthritis and Crohn's Disease
Researchers have found that boswellia helps prevent the deterioration of cartilage and joint tissue. This suggests that boswellia may relieve symptoms in arthritis by inhibiting the breakdown of connective tissues that is caused by tumor necrosis factor-alpha-induced expression of matrix metalloproteinase enzymes. Studies in both humans and dogs show after as little as two weeks of boswellia therapy include reduced pain, stiffness, and lameness.
In patients with rheumatoid arthritis and Crohn's disease, boswellia can help reduce the immune cells that promote inflammation while increasing the number of immune cells that inhibit inflammation (anti-inflammatory cells). In studies of patients with inflammatory bowel disease, ulcerative colitis and Crohn's disease boswellia reduced gastrointestinal inflammation and tissue damage.
http://www.suite101.com/blog/daisyelaine/boswellia_reduces_inflammation
LDN Study/Trial for Active Crohn's - *link*
I'm searching to find out why this drug that is said to help people with autoimmune diseases - Crohn's being just one of the diseases, is not approved by the FDA yet for the treatment of autoimmune diseases.
There are so many positives for prescribing this drug vs all the biologics that come with the risk of some very dangerous side effects. Not to mention, naltrexone is super reasonable in price, few side-effects and is effective!
I just wanted to share my findings when searching on the FDA site for clinical trials. Let me know if you find this encouraging or helpful to you.